Referenser

Lipödem vårdgivare – Referenslista

Alwardat N, Di Renzo L, Alwardat M, et al. (2020). The effect of lipedema on health-related quality of life and psychological status: a narrative review of the literature. Eat Weight Disord., 25(4):851-856. doi:10.1007/s40519-019-00703-x

Al-Ghadban, S., Cromer, W., Allen, M., Usery, C., Badowski, M., Harris, D., & Herbest, K.L. (2019). Dilated Blood and Lymphatic Microvessels, Angiogenesis, Increased macrophages, and Adipocyte Hypertrophy in Lipedema Thigh Skin and Fat Tissue. Journal of Obestiy, 1-11. ID 8747461. http://doi.org/10.1155/2019/8747461.

Al-Ghadban, S., Herbst, L. K., & Bunnell, B. A. (2019). Lipedema: A Painful Adipose Tissue Disorder. In book: Adipose Tissue [Working Title]. DOI: 10.5772/intechopen.88632.

Child, A.H., Gordon, K.D., Sharpe, P., et al. (2010). Lipedema: an inherited condition. Am J Med Genet A. 152A(4), 970-976. doi:10.1002/ajmg.a.33313

Collins, S.L., Moore, A. & McQuay, H.J. (1972). The visual intensity scale: what is moderate pain in millimeters? Pain, (72), 95–97.

 Beltran, K., & Herbst, K.L. (2017). Differentiating lipedema and Dercum’s disease. International Journal of Obesity, 41(2):240-245.

Borg, G. (1998). Borg´s perceived exertion and pain scales. Champaign (IL): Human Kinetics.

Bulbena, A., Duró, J., Porta, M., Faus, S., Vallescar, R., & Martín-Santos, R. (1992) Clinical assessment of hypermobility of joints: Assembling criteria. The Journal of Rheumatology, 19, 115-122.

Beighton, P., Solomon, L., & Soskolne, L. (1973). Articular mobility in an African population. Annals of the Rheumatic Diseases, 32, 413-418.

Buso, G., Depairon, M., Tomson, D., Raffoul, W., Vettor, R., & Mazzolai, L. (2019). Lipedema: A Call to Action! Obesity (Silver Spring), 27(10):1567-1576. doi:10.1002/oby.22597

Butland, R.J, Pang, J., Gross, E.R., Woodcok, A.A., & Geddes D.M. (1982). Two-, six-, and 12-minutes walking tests in respiroatory disease. Br Med J (Clin Res Ed), 284 (6329), 1607-8.

Child A.H., Gordon K.D., Sharpe P., Brice G., Ostergaard P., Jeffery S., & Mortimer P.S. (2010). Lipedema: An inherited condition. Am J Med Genet Part A, 152A, 970–976.

Dudek, J. E., Bialaszek, W., & Ostaszewski, P. (2016). Quality of life in women with lipoedema: a contextual behavioral approach. Quality of Life Research, 25(2), 401-408. DOI: 10.1007/s11136-015-1080-x.

Dudek JE, Białaszek W, Ostaszewski P, Smidt T. (2018). Depression and appearance-related distress in functioning with lipedema. Psychol Health Med., 23(7):846-853. oi:10.1080/13548506.2018.1459750

Fetzer, A. & Wise, C. (2015). Living with lipoedema: reviewing different self-management techniques. Chronic Oedema, S14-S19.

Fetzer, A. (2016). Specialist approaches to managing lipoedema. Chronic Oedema, 1-4. DOI: 10.12968/bjcn.2016.21.Sup4.S30

Forner-Cordero, I., Szolnoky, G., Forner-Cordero, A., Kemény, L. (2012). Lipedema: An overview of its clinical manifestations, diagnosis and treatment of the disproportional fatty deposition syndrome – systematic review. Clin Obes., 2 (3-4), 86-95.
doi: 10.1111/j.1758-8111.2012.00045.x. Epub 2012 Aug 3.

FYSS – Fysisk aktivitet i sjukdomsprevention och sjukdomsbehandling. 2016.

Gullacksen, A-C. (1998) När smärtan blir en del av livet. Livsomställning vid kronisk sjukdom och funktionshinder. Socialhögskolan, Lunds universitet.

Hassmén, P. (1991). Perceived exertion: applications in sports and exercise. Stockholm: Psykologiska institutionen, Stockholms universitet. Doktorsavhandling. ISBN: 91-7146-902-8 (tryckt).

Herbst, K.L. (2012). Rare adipose disorders (RADs) masquering as obesity. Acta Pharmacol Sin, 33(2):155-72. Dkoi:10.1038/aps.2011.153.

Herbst KL. Subcutaneous Adipose Tissue Diseases: Dercum Disease, Lipedema, Familial Multiple Lipomatosis, and Madelung Disease. [Updated 2019 Dec 14]. In: Feingold KR, Anawalt B, Boyce A, et al., editors. Endotext [Internet]. South Dartmouth (MA): MDText.com, Inc.; 2000-. Available from: https://www.ncbi.nlm.nih.gov/books/NBK552156/.

Hays, R.D., Sherbourne, C.D., & Mazel, R.M. (1993). The RAND 36-Item Health Survey 1.0. Health Econ, 2(3):217-227. doi:10.1002/hec.4730020305

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Herbst K.L. et al. (2015). Lipedema fat and signs and symptoms of illness, increase

with advancing stage. Archives of Medicine,7, 1–8.

Jordan, J.L., Holden, M.A., Mason, E.E., Foster, N.E. (2010). Interventions to improve adherence to exercise for chronic musculoskeletal pain in adults. Cochrane Database Syst Rev., 20 (1). CD005956.

Langendoen, S.I., Habbema, L., Nijsten, T.E.C., & Neumann, H.A.M. (2009). Lipoedema: from clinical presentation to therapy. A review of the literature.
British Journal of Dermatology, 161, 980–986. DOI 10.1111/j.1365-2133.2009.09413.x

Lipedema guidelines in the Netherlands, (2014). Dutch Society for Dermatology and Venereology

(NVDV). Download: Dutch-lipoedema-guideline-2014.pdf (2020-09-17).

Lontok, E.T., Briggs, L.T., & Mosley, E. (2017). Lipedema: A Giving Smarter Guide. At: https://www.researchgate.net/publication/314134271 (2020-09-17).

Mattsson, E., Larsson, & U.E, Rössner, S. (1997). Is walking for exercise too exhausting for obese women? Int J Obes Relat Metab Disord, 21, 380–6.

Melamed S., Kushnir T., & Shirom, A. (1992). Burnout and risk factors for cardiovascular diseases. Behav med, 18, 53-60.

Okhovat, J.P., & Alavi, A. (2015). Lipedema: a review of the litterature. Int J Low Extrem Wounds, 14(3), 262–7.

Paolacci S, Precone V, Acquaviva F, et al. Genetics of lipedema: new perspectives on genetic research and molecular diagnoses. Eur Rev Med Pharmacol Sci., 23(13),5581-5594. doi:10.26355/eurrev_201907_18292.

Polatajko, H.J, Townsend, E.A. & Craik, J. (2007). The Canadian Model of Occupational Performance and Engagement (CMOP-E). In: Enabling Occupation II: Advancing an Occupational Therapy Vision of Health, Well-being, & Justice through Occupation. E.A. Ottawa, ON: CAOT Publications.

Reich-Schupke, S., Altermeyer, P., & Stȕcher, M. (2013). Thick legs – not always lipedema. J Deutsch Dermatol Ges, 11(3), 225–33.

Romeijn JRM, de Rooij MJM, Janssen L, Martens H. (2018).  Exploration of Patient Characteristics and Quality of Life in Patients with Lipoedema Using a Survey. Dermatol Ther (Heidelb). 2018;8(2):303-311. doi:10.1007/s13555-018-0241-6

Salmon. P (2001). Effects of physical exercise on anxiety, depression and sensitivity to stress: a unifying theory. Clinical Psychol Rev 21(1), 33-61.

Shirom A., Westman M., Shamai O., & Carel, R.S. (1997). The effects of work overload and burnout on cholesterol and triglyceride levels: the moderating effects of emotional reactivity among male and female employees. J Occup Health Psychol, 2, 275-588.

Todd, M (2010). Lipedema: presentation and management. Br J Community Nurs 15(4), 10-16.

Tylka, T.L, & Wood-Barcalow, N.L. (2015). The Body Appreciation Scale-2: Item refinement and psychometricevaluation. Body Image 12, 53–67. http://dx.doi.org/10.1016/j.bodyim.2014.09.006

van Esch-Smeenge, J., Damstra, R.J, & Hendrickx, A.A. (2017). Muscle strength and functional exercise capacity in patients with lipoedema and obesity: a comparative study. Journal of Lymphoedema, 12 (1), 27-31.

Wounds UK., (2017).  Best Practice Guidelines: The Management of Lipoedema. London: Wounds UK. Download from: www.wounds-uk.com.

Lipödemprogrammet – Referenslista

Aitken, R.C. (1969). Measurement of feelings using visual analogue scales. Proc Roy Soc Med. 1969; 62:989-993.

Beighton, P., Solomon, L., & Soskolne, L. (1973). Articular mobility in an African population. Annals of the Rheumatic Diseases, 32, 413-418.

Borg, G. (1998). Borg´s perceived exertion and pain scales. Champaign (IL): Human Kinetics.

Bulbena, A., Duró, J., Porta, M., Faus, S., Vallescar, R., & Martín-Santos, R. (1992) Clinical assessment of hypermobility of joints: Assembling criteria. The journal of rheumatology. 19, 115-122.

Butland, R.J, Pang, J., Gross, E.R., Woodcok, A.A., & Geddes D.M. (1982). Two-, six-, and 12-minutes walking tests in respiroatory disease. Br Med J (Clin Res Ed), 284 (6329), 1607-8.

Collins, S.L., Moore, A., & McQuay, H.J. (1972). The visual intensity scale: what is moderate pain in millimeters? Pain, (72), 95–97.

Gattario, K.H., & Frisén, A. (2019). From negative to positive body image: Men’s and women’s journeys from early adolescence to emerging adulthood. Body Image. Mar;28:53-65. doi: 10.1016/j.bodyim.2018.12.002. Epub 2018 Dec 21.

Gullacksen, A-C. (1998) När smärtan blir en del av livet. Livsomställning vid kronisk sjukdom och funktionshinder. Socialhögskolan, Lunds universitet.

Hays, R.D., Sherbourne, C.D., & Mazel, R.M. (1993). The RAND 36-Item Health Survey 1.0. Health Econ, 2(3):217-227. doi:10.1002/hec.4730020305.

Law, M., Baptiste, S., Carswell, A., McColl, M.A., Polatajko, H., & Pollock, N. (2020). Canadian Occupational Performance Measure (COPM), (K. Samuelsson & A. Bergström, övers. och bearb., 5:e upplagan). Nacka: Sveriges Arbetsterapeuter.

Maffetone, P. (2010). The assessment and treatment of muscular imbalance – The Janda Approach. July. Journal of Bodywork and Movement Therapies 14(3):287–288

DOI: 10.1016/j.jbmt.2009.11.003.

Melamed, S., Kushnir, T., & Shirom, A. (1992). Burnout and risk factors for cardiovascular diseases. Behav med; 18:53-60.

Morris, C.E., Greenman, P.E., Bullock, M.I., Basmajian, J.V., & Kobesova, (2006). A. Vladimir Janda, MD, DSc: tribute to a master of rehabilitation. Spine (Phila Pa 1976). Apr 20;31(9):1060-4. doi: 10.1097/01.brs.0000214879.93102.4e. PMID: 16641785.

Polatajko, H.J, Townsend, E.A., & Craik, J. (2007). The Canadian Model of Occupational Performance and Engagement (CMOP-E). In: Enabling Occupation II: Advancing an Occupational Therapy Vision of Health, Well-being, & Justice through Occupation. E.A. Ottawa, ON: CAOT Publications ACE.22-36

Redondo Galán, C., García Bascones, M., & Marquina Valero, M. A. (2019). Lipedema: clínica, diagnóstico y tratamiento. Revisión de la literatura [Lipoedema: Symptoms, diagnosis and treatment. A literature review]. Rehabilitacion53(2), 104–110. https://doi.org/10.1016/j.rh.2018.04.007

Tylkaa, T.L., Wood-Barcalow, N.L. (2015). The Body Appreciation Scale-2: Item refinement and psychometric evaluation. Body Image, 12, 53-67

Wollina U. (2017). Das Lipödem: Aktuelle Aspekte einer lange vergessenen Erkrankung [Lipedema: up-to-date of a long forgotten disease]. Wien Med Wochenschr. Oct;167(13-14):343-348. German. doi: 10.1007/s10354-017-0566-2. Epub 2017 May 10. PMID: 28493139.

Wounds UK., (2017).  Best Practice Guidelines: The Management of Lipoedema. London: Wounds UK. Download from: www.wounds-uk.com.

Europeiska consensus…